Find a Physcian
If you are diagnosed with a desmoid tumor it is recommended that you be evaluated in a major, academic hospital with experts in sarcoma. Patients with desmoid tumors should be evaluated by a multi-disciplinary team of surgeons, medical oncologists, radiation oncologists, geneticists and nurses.
Sarcoma Alliance for Research through Collaboration (SARC) works with healthcare professionals as part of a collaborative team from over 35 institutions in the United States and many international institutions as well.
To participate in SARC, physicians must be part of a multidisciplinary sarcoma practice that includes expertise in diagnosis (pathology and radiology physicians) and treatment (pediatric, medical, radiation, surgical and orthopedic oncologist) of sarcoma. In addition, participants must have a commitment to research and a practice that sees at least 80 (only 20 if purely a pediatric center) new sarcoma cases per year. SARC participants are committed to the Connective Tissue Oncology Society (CTOS) model and philosophy that sarcomas are best studied and managed in a collaborative fashion.
Physicians who are members of SARC can be found below, other well known Sarcoma institutions are also listed here for your convienience.
SARC Participants
United States
Arkansas Children’s Hospital
Little Rock, Arkansas
archildrens.org/
Case Western (University Hospitals of Cleveland)
Cleveland, OH
uhhospitals.org
Carolinas Hematology and Oncology Association
Charlotte, NC
carolinashealthcare.org/
Cedars Sinai Medical Center
Los Angeles, CA
referrals.cedars-sinai.edu/default.aspx
City of Hope National Medical Center
Duarte, CA
cityofhope.org/Physicians/
Cleveland Clinic Foundation
Cleveland, OH
clevelandclinic.org/staff/
Dana-Farber Cancer Institute
Boston, MA
dana-farber.org/
Duke University
Durham, NC
dukehealth.org/
Emory University
Atlanta, GA
emoryhealthcare.org/
Fox Chase Cancer Center
Philadelphia, PA
fccc.edu/physician_directory/
H. Lee Moffitt Cancer Center and Research Institute
Tampa, FL
moffitt.org/
Huntsman Cancer Institute
Salt Lake City, UT
huntsmancancer.org/
Indiana University Cancer Center
Indianapolis, IN
cancer.iu.edu/programs/sarcoma/
Johns Hopkins Medical Center
Baltimore, MD
hopkinshospital.org/
Kootenai Cancer Center
Coeur d’Alene, ID
kmc.org/cancer.cfm?id=87#
Massachusetts General Hospital
Boston, MA
massgeneral.org/cancer/care
Mayo Clinic
Rochester, MN
mayoclinic.org/
MD Anderson Cancer Center
Houston, TX
mdanderson.org/Care_Centers/Sarcoma/
Memorial Sloan Kettering Cancer Center
New York, NY
mskcc.org/mskcc/html/435.cfm
National Cancer Institute
Bethesda, MD
cancer.gov/cancertopics/
Nebraska Methodist Hospital
Omaha, NE
www.bestcare.org/
Oregon Health and Science University
Portland, OR
ohsu.edu/health/
Pennsylvania Oncology and Hematology Associates
Philadelphia, PA
pennhealth.com/Wagform/
Roswell Park Cancer Institute
Buffalo, NY
roswellpark.org/Patient_Care/ Types_of_Cancer/Sarcoma
Sarcoma Oncology Center
Santa Monica, CA
sarcomaoncology.com/
Stanford Comprehensive Cancer Center
Stanford, CA
cancer.stanford.edu/
Texas Children’s Cancer Center
Houston, TX
txccc.org/content.cfm?content_id=936
UCLA Cancer Center
Los Angeles, CA
cancer.mednet.ucla.edu/
University of Arizona
Tucson, AZ
arizonacancercenter.org/
University of Colorado
Denver, CO
/upi.uchsc.edu/prp_cc_sarc.html
University of Florida Health/Science Center
Gainesville, FL
health.ufl.edu/
University of Iowa
Iowa City, Iowa
uihealthcare.com/depts/
cancercenter/index.html
University of Michigan Cancer Center
Ann Arbor, MI
cancer.med.umich.edu/ cancertreat/tissue_bone/
University of Pittsburgh Medical Center
Pittsburgh, PA
upmccancercenters.com/
University of Washington/Seattle Cancer Care Alliance
Seattle, WA
seattlecca.org/patientsandfamilies/
Vanderbilt University Medical Center
Nashville, TN
vicc.org/cancers/disease.php?id=54
Wake Forest University Baptist Medical Center
Winston-Salem, NC
wfubmc.edu/cancer/
Washington, DC Cancer Institute (Medstar)
Washington, DC
whcenter.org/
Other Sarcoma Centers
United States
The Linberger Comprehensive Cancer Center
at the University of North Carolina at Chapel Hill
(Chapel Hill, NC)
cancer.med.unc.edu/patient/programs/sarcoma.asp
The Denver Clinic For Extremities at Risk
Presbyterian/St.Luke's Medical Center
(Denver, CO)
thedenverclinic.com
Univ of California Davis Sarcoma Program
ucdmc.ucdavis.edu/cancer/Specialties /bone_softtissue.html
Children's Hospital of Los Angeles
childrenshospitalla.org
University of California, San Francisco
(San Francisco, CA)
cancer.ucsf.edu
Miami Sarcoma Group
miamisarcomagroup.com
Univ of Florida Shands Cancer Center
ufscc.ufl.edu/Patient/content.aspx
Emory Winship Cancer Institute
Atlanta
cancer.emory.edu/sarcoma/index.php
University of Iowa, Holden Cancer Center
Iowa City, Iowa
int-med.uiowa.edu/
Mid-America Sarcoma Institute
menorahmedicalcenter.com/
Johns Hopkins Sarcoma Center
hopkinskimmelcancercenter.org/index.cfm/cid/1321
Sarcoma Alliance for Research through Collaboration
sarctrials.org
University of Minnesota Cancer Center
(Minneapolis, MN)
cancer.umn.edu/page/sarcoma
Morristown Memorial Hospital; satellite clinic of Mount Sinai in NYC
Staffed by James C. Wittig, MD of Mount Sinai
http://www.atlantichealth.org/
Columbia Presbyterian Sarcoma Program
(New York, New York)
hora.cpmc.columbia.edu/dept/medicine/sarcoma/indexorig.html
St. Vincent's Cancer Center, NY, Sarcoma Program
svccc.com/about/directory/rosen.php
Ohio State University Sarcoma Program
jamesline.com/cancertypes/softtissue
Summa Health System
(Akron, Ohio)
summahealth.org
Joan Karnell Cancer Center at Pennsylvania Hospital
(Philadelphia, PA)
pennmedicine.org/
Mount Sinai Hospital / Tisch Cancer Institute
Hollings Cancer Center
(Charleston, SC)
mountsinai.org
Medical University of South Carolina
Hollings Cancer Center
(Charleston, SC)
hcc.musc.edu
Washington Cancer Institute
(Washington DC)
sarcoma.org
Froedtert & The Medical College of
Wisconsin Clinical Cancer Center Milwaukee
froedtert.com/SpecialtyAreas/ BoneandConnectiveTissueCancer/
CANADA
Fraser Valley Cancer Centre
(British Columbia)
bccancer.bc.ca/RS/FraserValleyCentre/
Cancer Care Ontario - Sarcoma Disease Site Group
cancercare.on.ca/index_sarcomadsg.htm
United Kingdom
St Mark's Hospital
(London)
polyposisregistry.org.uk
British Sarcoma Group
bsgconference.org.uk
Christie Hospital Sarcoma Team, Manchester, England
christie.nhs.uk/patients/booklets/ text/sarcomas/default.aspx
Sarcoma UK
sarcoma-uk.org
The Royal Marsden Sarcoma Unit
royalmarsden.org.uk/RMH/ healthcare/clinicalunits/sarcomaunit
Germany
University of Heidelberg
sos-desmoid.de
Sarcoma Germany
sarkome.de
Australia
Australasian Sarcoma Study Group
australiansarcomagroup.org/ find-specialist.html
Peter Mac Sarcoma Service
petermac.org/patcar/sarco.htm
European Union
European Organization for the Research and Treatment of Cancer
eortc.be
EORTC Sarcoma Conference
sarkome.de/sarcoma2006
ESMO - European Society of Medical Oncology
esmo.org
CancerWorld
cancerworld.org
France French Sarcoma Group
gsf-geto.org
India Soft Tussue Toumour Online
geocities.com/sampyroy2000/ SoftTissueTumour.html
Italy Italian Sarcoma Group
italiansarcomagroup.org
Netherlands Soft Tissue Sarcoma People
stsp.org
Leiden Universitair Medisch Centrum (LUMC)
www.lumc.nl
Nederlands Kankerinstituut - Antoni van Leeuwenhoek ziekenhuis (NKI-AVL)
www.nki.nl
Universitair Medisch Centrum St. Radboud Nijmegen (UMCN)
www.umcn.nl
Erasmus Medisch Centrum Rotterdam
www.erasmusmc.nl
Universitair Medisch Centrum Groningen (UMCG)
www.umcg.nl
Russia Children and Parents Against Cancer - Russia
capac.ru
Spain Spanish Sarcoma Group
grupogeis.org
Sweden Scandinavian Sarcoma Group
ssg-org.net
Switzerland Istituto Oncologico della Svizzera Italiana (IOSI)
eoc.ch/eoc/ospedali/iosi.html
When evaluating treatment options, it is prudent to find a physician experienced in desmoid tumors. Also, consider getting more than one opinion. As desmoids are soft-tissue tumors, physicians experienced in the treatment of sarcoma may be the most familiar with desmoid diagnosis and treatment. This article describes the importance of being treated by physicians experienced with sarcomas.
