Take Action


Create your own fundraising campaign!


Whether you decide to raise funds for research on your own behalf, or a loved one's, DTRF can help you create your own online fundraising campaign. Not only will you be virtual, and able to reach out through your online networks, you'll be able to include your own personal story to ensure that family and friends become aware of desmoids. This is a great way in joining DTRF in finding a cure.

Email Lynne at lynne@dtrf.org to get started!

Start a letter-writing campaign!


Write to people you know to raise money for desmoid tumor research. This could be done by email or regular mail. Click here for a sample letter.


Encourage company donations!


Please let your employer know about the DTRF. Encouraging your company to make a corporate donation to DTRF may be easier than you think.


Make a tax-deductible donation

Your financial support is the only way we can accomplish the goal of new treatments.  Together we will find a cure. Donate here.

Donate tissue

Researchers are in desperate need of additional desmoid tumor tissues, whether old or new. Whether your tumor was removed decades ago, or you are contemplating surgery in the future, samples of your tissue are invaluable for research. For further details, please email Marlene Portnoy at marlene@dtrf.org.

Support an event

Join a DTRF event, or start one of your own!  You can make a difference as an advocate for a cure. See Upcoming Events, Past Signature DTRF Events, PAST Patient-Organized Events, Plan Your Own Event.

Join a Clinical Trial

If your physician recommends it and you qualify, your participation in a clinical trial will help advance science at the same time as receiving treatment. For more information, visit here.

Consider many other ways to support DTRF

You can help support desmoid tumor research by obtaining your employer’s matching gift or sponsorship of an event, donate securities, create planned or deferred gifts. Ways to Donate.