Upcoming Events

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2013 DTRF Patient Meeting and Running for Answers 5K

Be sure to join us on Saturday, September 28, 2013 for our Patient Meeting in the City of Brotherly Love, Philadelphia. Stay overnight in the city and then come out to our Running for Answers 5K on Sunday, September 29!

Check out more information on hotel accommodations and distinguished speakers who will be featured at the Patient Meeting here.

Visit www.runningforanswers.com to register!

 

Get ready for the Chicago Fundraiser for Desmoid Tumor Research Foundation!

Join patients, family and friends to support desmoid tumor research.
Together we can create hope, build awareness and find a cure.

Join Beth and Drew Bialko- support them in their journey with DTRF- to find a cure for desmoid tumors. To learn more about this amazing couple, watch their story HERE.

May 14, 2013 from 6- 9pm

Mastro's Steakhouse, 520 N Dearborn St, Chicago, IL 60654

Special Guest: Marlene Portnoy, Executive Director for DTRF

Wine and Hors d'oeuvres provided by Mastro's.

Deluxe raffle items and silent auction.

Cost is $100 a person

BUY TICKETS NOW at dtrf.org/livewithoutlimits

Host committee: Beth Bialko, Drew Bialko, Kimberly Greenberg, MaryJane Gillespie, Christine Kurban, Kim Lichtenstein, Gina Marotta and Erica Strama

2013 DTRF Comedy Show and Wine Tasting

Join us for an evening of wine and laughter featuring a comedy performance by Rosie O'Donnell and wines by The Grape D'Vine. This special event will be held on Wednesday, June 5th from 7- 10pm at The View, 101 Shad Row, Piermont, NY.

BUY TICKETS NOW at dtrf.org/winetasting2013

BUY TICKETS NOW at dtrf.org/winetasting2013

2013 Annual Golf Classic in Mahwah, New Jersey

Come out to Apple Ridge Country Club for a golf outing in support of DTRF on June 17, 2013. This is a great way to soak up some gorgeous weather in good company for a great cause!

Click here to access a readable version of the brochure below. (After clicking on the link, click again to magnify the image.)

The 5th Annual Lap4Life

Lap 4 Life is a non- profit organization created to raise money and awareness for Desmoid Tumors and Organ Transplant Research. Eleven years ago, at the age of 30, my brother Angelo was affected by a rare disease, desmoid tumors. These  rare tumors affect one in every 2-4 million people. After nine years of medical treatment and multiple surgeries with subsequent complications he was left with few options.  A final attempt to remove his large desmoid required resection of his entire small intestine.  Following this, he could no longer eat and was reliant on intravenous nutrition.

Six months later he received an intestinal transplant, a rare and risky procedure.  This is currently the only hope of survival for patients with intestinal failure who are dependent on and often do not tolerate intravenous nutrition.  Seven weeks after his transplant, he returned home to resume his life as a loving father and husband.  Unfortunately, one week after being home, at the age of 39, he succumbed to an illness that his weakened immune system could not ward off.

Make sure that you mark your calendar for the 5th Annual Lap4Life, in memory of Angelo, at Chadwick Lake on June 22, 2013! This special event includes a 4 mile run, walk and kids' fun run.

Check out their website below!  http://www.lap4life.org/ 

2013 Kutztown Fall Festival

This special event, on September 21, 2013, will be held at Kutztown Fairgrounds in Kutztown, PA, in support of DTRF and Austin's Fibromatosis Research Fund. The Fall Festival will include a Car & Motorcycle Show; Craft & Home Show booths; Food & Homemade Bake Sale; Children's Entertainment & Crafts; Carnival Games; a Raffle, Silent Auction and more! Stay tuned for more details!

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