Upcoming Events

Please let us know of any upcoming events so we can communicate them on the website. Send an email to events@dtrf.org or lynne@runningforanswers.com.


Bowl for a Cure! on behalf of Christian Sidebottom on July 26, 2014

Where? Prescott Plaza Bowl, 127 Plaza Drive, Prescott, AZ 86303

When? 26th July at 10 am

Each bowler is encouraged to find sponsers (by July 19th) to commit to a flat donation. We are also selling raffle tickets and have some great prizes:

  • 2 box seats for the Phoenix Suns including food, wine and beer
  • a BBQ Grill
  • an ipod
  • a round of golf for 2 people and more!

People can register for the bowling by calling Karen 928-460-3029 or Vergie 928-848-1897!



I LOVE SOMEONE RARE- A Celebration of Warriors on August 9, 2014

This special event will feature speakers from the Huntsman Cancer Institute on FAP and desmoid tumors in the afternoon, and music and celebration in the evening.

When? Noon- 11pm; Music starts at 6pm

Where? Boothe Brothers Performing Arts Center, Spanish Fork, Utah

For questions about the event, contact DeAnn Sorenson at ds4evr25@com or Mechelle at mrcebrowski@gmail.com.

Donate here!

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Beef N' Beer on behalf of RFA Team Desmoid Destroyers on September 6, 2014

Join the Desmoid Destroyers for a BEEF & BEER at the Holy Savior Club (436 E.Main St. Norristown, PA. 19401) on Saturday, September 6th from 6pm-11pm. The menu features roast beef sandwiches, beer (Coors Light), spaghetti and homemade Italian meatballs, tomato pie or pizza, dessert and coffee. We'll have music also!

Tickets are $30 per person, and 50/50 tickets will be $5 each, and we will also be having raffle baskets. Interested in a FUN TIME in the heart of Norristown on behalf of DTRF? Email Anthony Fiore at afiore1969@aol.com and he'll reserve a place at the table for you!



Kutztown Fall Festival on September 20, 2014

This special event will be held at Kutztown Fairgrounds in Kutztown, PA, in support of DTRF and Austin's Fibromatosis Research Fund. The Fall Festival will include a Car & Motorcycle Show; Craft & Home Show booths; Food & Homemade Bake Sale; Children's Entertainment & Crafts; Carnival Games; a Raffle, Silent Auction and more! Stay tuned for more details!



Fundraising Dinner in Swiss Alps on September 20, 2014

Stay tuned for more details!



DTRF Patient Meeting & 2014 5th Annual Running for Answers 5K Run/ Walk and Kids' Fun Run

Every fourth weekend in September, we hold our annual DTRF signature events: The DTRF Patient Meeting and Running For Answers. This is an important weekend of information, support, collaboration, hope and raising funds for research. See details here.

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2nd Annual Desmoid Dash in Minnesota on October 11, 2014

The 2013 Desmoid Dash was extremely successful, raising over $50K! Join hundreds of runners, once again, for this amazing race driven by survivors and volunteers! Follow them here!

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Purchase apparel supporting desmoid awareness!

Interested in creating awareness around desmoid tumors without even saying a word? Vist Desmoid Apparel to purchase items. All proceeds go to DTRF, courtesy of Michelle Fino and her son, Zaya, an 11 year old desmoid survivor. Thank you both for your support and commitment to spread the word!


Review Past Events