Upcoming Events

Please let us know of any upcoming events so we can communicate them on the website. Send an email to events@dtrf.org or lynne@runningforanswers.com.

 


The Race to OZ: A Virtual Race through Kansas

"Take me home to Aunt Em!" We all know the beloved story of Dorothy and her dog Toto written by L. Frank Baum. Our love for Dorothy Medaland her friends the Scarecrow, the Tin Woodman, and the Cowardly Lion are forever etched in our hearts.

Virtually travel a 26.2-mile trek across the plains of Kansas down the Yellow Brick Road and on to Dorothy’s home.

Sign up here then connect your Fitbit, Garmin, Mapmyfitness or Runkeeper to make your way down the yellow brick road. You may also use the manual entry feature to record your 26.2 miles. Earn Google street views of your location on the route as workouts (Run/Walk/Cycle) are entered and learn some trivia along the way.

Registration is now open and currently has no end date, so take as long as you need to complete the race!

All Participants will receive this awesome glitter medal (not scaled to size)!

Special thank you to Lindsay Orsi and Make Yes! Happen for allowing the Desmoid Tumor Research Foundation to be an affiliate partner and non-profit beneficiary of this event!

 


 

VENDOR BINGO HOSTED BY AUSTIN'S FIBROMATOSIS RESEARCH FUND ON MARCH 20, 2016

This event will take place at the Kutztown Fire Company. Stay tuned for more information.

 

 


 

A Celebration of Hope on May 21, 2016

The Wilmarth and Gallagher families have got a big surprise for the Westmoreland County Fairgrounds in Pleasant Unity, PV on May 21st! This fun- filled day will include crafters, vendors, kids' activities, door prizes and raffles! 

There will also be a golf tounament at the Norvelt Gold Course adjacent to the Westmoreland County Fairgrounds. Participants are invited to attend. For information and to sign up contact: smokerrobert@gmail.com

There are currently indoor and outdoor spaces spaces available for crafters and vendors. For more information contact: dewilmarth@comcast.net

Artists and Entertainers who still wish to participate should Contact: mceidro@yahoo.com

Persons wishing to purchase candles for the candlelighting ceremony should contact: dewilmarth@comcast.net

Raffles, door prizes, silent auction items will be available on the day of the event. We are currently working on a car show and live radio coverage for the day.

Please visit: www.dtrfcelebrationofhope.com for more information and updates on the event.

 

 


 

DTRF Golf Outing in Tuxedo, NY on June 13, 2016

Save the date for this special event... details to follow. For more more information, email marlene@dtrf.org.

 


 

Eighth Annual Lap4Life on June 18, 2016

Are you ready for an amazing race in Newburgh, NY on June 18th? This special event, created in memory of Angelo Casabianca, includes 3 events: a 4 mile walk or run and a 1/4 mile kids run! Join the desmoid tumor community, along with the town of Newburgh! Stay tuned for registration details.

 

 


 

 

AUSTIN'S FIBROMATOSIS RESEARCH FUND'S USED CLOTHING DRIVE & CHICKEN DINNER ON JUNE 11 & 12, 2016

These events will take place at the Lyons Fire Company. Stay tuned for more information.

 


 

Summer Rock Festival on June 25, 2016

The Jordan Family asks that you save the date for the Summer Rock Festival on June 25, 2016 in Harrisburg, PA! This full day event will take place at Double K's, 7495 Jonestown Rd, Harrisburg, PA! Stay tuned for more details!

 

 


 

 

"CARRIE ON" WALK-A-THON AND PICNIC IN HEMLOCK, MI ON AUGUST 20, 2016

Join Nancy Deibel and her family for a walk-a-thon and picnic in memory of her daughter, Carrie. Stay tuned for more details about this special event.

 

 

DINNER DANCE HOSTED BY AUSTIN'S FIBROMATOSIS RESEARCH FUND ON SEPTEMBER 17, 2016

Stay tuned for more information.

 

 


 

Fourth Annual Desmoid Dash on Saturday, October 1, 2016

If you're in the midwest, this is the perfect event for you! Save the date (tentative) for Saturday, October 1st to join other desmoid tumor patients, their families and the Mendota Heights running community for this special 5K race! Stay tuned for more details!