Find a Physcian

If you are diagnosed with a desmoid tumor it is recommended that you be evaluated in a major, academic hospital with experts in sarcoma. Patients with desmoid tumors should be evaluated by a multi-disciplinary team of surgeons, medical oncologists, radiation oncologists, geneticists and nurses.

Sarcoma Alliance for Research through Collaboration (SARC) works with healthcare professionals as part of a collaborative team from over 35  institutions in the United States and many international institutions as well.   

To participate in SARC, physicians must be part of a multidisciplinary sarcoma practice that includes expertise in diagnosis (pathology and radiology physicians) and treatment (pediatric, medical, radiation, surgical and orthopedic oncologist) of sarcoma.  In addition, participants must have a commitment to research and a practice that sees at least 80 (only 20 if purely a pediatric center) new sarcoma cases per year. SARC participants are committed to the Connective Tissue Oncology Society (CTOS) model and philosophy that sarcomas are best studied and managed in a collaborative fashion. 

Physicians who are members of SARC can be found below, other well known Sarcoma institutions are also listed here for your convienience.

SARC Participants

UNST0001United States

Arkansas Children’s Hospital
Little Rock, Arkansas
archildrens.org/

Case Western (University Hospitals of Cleveland)
Cleveland, OH
uhhospitals.org

Carolinas Hematology and Oncology Association
Charlotte, NC
carolinashealthcare.org/

Cedars Sinai Medical Center
Los Angeles, CA
referrals.cedars-sinai.edu/default.aspx

City of Hope National Medical Center
Duarte, CA
cityofhope.org/Physicians/

Cleveland Clinic Foundation
Cleveland, OH
clevelandclinic.org/staff/

Dana-Farber Cancer Institute
Boston, MA
dana-farber.org/

Duke University
Durham, NC
dukehealth.org/

Emory University
Atlanta, GA
emoryhealthcare.org/

Fox Chase Cancer Center
Philadelphia, PA
fccc.edu/physician_directory/

H. Lee Moffitt Cancer Center and Research Institute
Tampa, FL
moffitt.org/

Huntsman Cancer Institute
Salt Lake City, UT
huntsmancancer.org/

Indiana University Cancer Center
Indianapolis, IN
cancer.iu.edu/programs/sarcoma/

Johns Hopkins Medical Center
Baltimore, MD
hopkinshospital.org/

Kootenai Cancer Center
Coeur d’Alene, ID
kmc.org/cancer.cfm?id=87#

Massachusetts General Hospital
Boston, MA
massgeneral.org/cancer/care

Mayo Clinic
Rochester, MN
mayoclinic.org/

MD Anderson Cancer Center
Houston, TX
mdanderson.org/Care_Centers/Sarcoma/

Memorial Sloan Kettering Cancer Center
New York, NY
mskcc.org/mskcc/html/435.cfm

National Cancer Institute
Bethesda, MD
cancer.gov/cancertopics/

Nebraska Methodist Hospital
Omaha, NE
www.bestcare.org/

Oregon Health and Science University
Portland, OR
ohsu.edu/health/

Pennsylvania Oncology and Hematology Associates
Philadelphia, PA
pennhealth.com/Wagform/

Roswell Park Cancer Institute
Buffalo, NY
roswellpark.org/Patient_Care/ Types_of_Cancer/Sarcoma

Sarcoma Oncology Center
Santa Monica, CA
sarcomaoncology.com/

Stanford Comprehensive Cancer Center
Stanford, CA
cancer.stanford.edu/

Texas Children’s Cancer Center
Houston, TX   
txccc.org/content.cfm?content_id=936

UCLA Cancer Center
Los Angeles, CA
cancer.mednet.ucla.edu/

University of Arizona
Tucson, AZ
arizonacancercenter.org/

University of Colorado
Denver, CO
/upi.uchsc.edu/prp_cc_sarc.html

University of Florida Health/Science Center
Gainesville, FL
health.ufl.edu/

University of Iowa
Iowa City, Iowa
uihealthcare.com/depts/
cancercenter/index.html

University of Michigan Cancer Center
Ann Arbor, MI
cancer.med.umich.edu/ cancertreat/tissue_bone/

University of Pittsburgh Medical Center
Pittsburgh, PA
upmccancercenters.com/

University of Washington/Seattle Cancer Care Alliance
Seattle, WA
seattlecca.org/patientsandfamilies/

Vanderbilt University Medical Center
Nashville, TN
vicc.org/cancers/disease.php?id=54

Wake Forest University Baptist Medical Center
Winston-Salem, NC
wfubmc.edu/cancer/

Washington, DC Cancer Institute (Medstar)
Washington, DC
whcenter.org/

 

 

 

 

 

Other Sarcoma Centers 

UNST0001United States

The Linberger Comprehensive Cancer Center
at the University of North Carolina at Chapel Hill
(Chapel Hill, NC)
cancer.med.unc.edu/patient/programs/sarcoma.asp

The Denver Clinic For Extremities at Risk
Presbyterian/St.Luke's Medical Center
(Denver, CO)
thedenverclinic.com

Univ of California Davis Sarcoma Program
ucdmc.ucdavis.edu/cancer/Specialties /bone_softtissue.html

Children's Hospital of Los Angeles
childrenshospitalla.org

University of California, San Francisco
(San Francisco, CA)
cancer.ucsf.edu

Miami Sarcoma Group
miamisarcomagroup.com

Univ of Florida Shands Cancer Center
ufscc.ufl.edu/Patient/content.aspx

Emory Winship Cancer Institute
Atlanta
cancer.emory.edu/sarcoma/index.php

University of Iowa, Holden Cancer Center
Iowa City, Iowa
int-med.uiowa.edu/

Mid-America Sarcoma Institute
menorahmedicalcenter.com/

Johns Hopkins Sarcoma Center
hopkinskimmelcancercenter.org/index.cfm/cid/1321

Sarcoma Alliance for Research through Collaboration
sarctrials.org

University of Minnesota Cancer Center
(Minneapolis, MN)
cancer.umn.edu/page/sarcoma

Morristown Memorial Hospital; satellite clinic of Mount Sinai in NYC
Staffed by James C. Wittig, MD of Mount Sinai
http://www.atlantichealth.org/

Columbia Presbyterian Sarcoma Program
(New York, New York)
hora.cpmc.columbia.edu/dept/medicine/sarcoma/indexorig.html

St. Vincent's Cancer Center, NY, Sarcoma Program
svccc.com/about/directory/rosen.php

Ohio State University Sarcoma Program
jamesline.com/cancertypes/softtissue

Summa Health System
(Akron, Ohio)
summahealth.org

Joan Karnell Cancer Center at Pennsylvania Hospital
(Philadelphia, PA)
pennmedicine.org/

Mount Sinai Hospital / Tisch Cancer Institute
Hollings Cancer Center
(Charleston, SC)
mountsinai.org

Medical University of South Carolina
Hollings Cancer Center
(Charleston, SC)
hcc.musc.edu

Washington Cancer Institute
(Washington DC)
sarcoma.org

 

Froedtert & The Medical College of
Wisconsin Clinical Cancer Center Milwaukee
froedtert.com/SpecialtyAreas/ BoneandConnectiveTissueCancer/

 

CANA0001 CANADA

 

Fraser Valley Cancer Centre 
(British Columbia) 
bccancer.bc.ca/RS/FraserValleyCentre/ 

Cancer Care Ontario - Sarcoma Disease Site Group
cancercare.on.ca/index_sarcomadsg.htm
 

UNKG0001United Kingdom

St Mark's Hospital 
(London) 
polyposisregistry.org.uk  

British Sarcoma Group
bsgconference.org.uk

Christie Hospital Sarcoma Team, Manchester, England
christie.nhs.uk/patients/booklets/ text/sarcomas/default.aspx

Sarcoma UK
sarcoma-uk.org

The Royal Marsden Sarcoma Unit
royalmarsden.org.uk/RMH/ healthcare/clinicalunits/sarcomaunit

 

germanyGermany

University of Heidelberg
sos-desmoid.de

Sarcoma Germany
sarkome.de

 

 

australiaflag Australia

 

Australasian Sarcoma Study Group
australiansarcomagroup.org/ find-specialist.html

Peter Mac Sarcoma Service
petermac.org/patcar/sarco.htm

 

 

Flag of Europe European Union

 

European Organization for the Research and Treatment of Cancer
eortc.be
EORTC Sarcoma Conference
sarkome.de/sarcoma2006
ESMO - European Society of Medical Oncology
esmo.org
CancerWorld
cancerworld.org

 

french-flag

France French Sarcoma Group
gsf-geto.org

indiaflagbig

India Soft Tussue Toumour Online
geocities.com/sampyroy2000/ SoftTissueTumour.html

italy

Italy Italian Sarcoma Group
italiansarcomagroup.org

netherlands

Netherlands Soft Tissue Sarcoma People
stsp.org

Leiden Universitair Medisch Centrum (LUMC)
www.lumc.nl

Nederlands Kankerinstituut - Antoni van Leeuwenhoek ziekenhuis (NKI-AVL)
www.nki.nl

Universitair Medisch Centrum St. Radboud Nijmegen (UMCN)

www.umcn.nl

Erasmus Medisch Centrum Rotterdam
www.erasmusmc.nl

Universitair Medisch Centrum Groningen (UMCG)
www.umcg.nl

russia

Russia Children and Parents Against Cancer - Russia
capac.ru

spain

Spain Spanish Sarcoma Group
grupogeis.org

sweden-flag

Sweden Scandinavian Sarcoma Group
ssg-org.net

swiss flag

Switzerland Istituto Oncologico della Svizzera Italiana (IOSI)
eoc.ch/eoc/ospedali/iosi.html

When evaluating treatment options, it is prudent to find a physician experienced in desmoid tumors.  Also, consider getting more than one opinion. As desmoids are soft-tissue tumors, physicians experienced in the treatment of sarcoma may be the most familiar with desmoid diagnosis and treatment.   This article describes the importance of being treated by physicians experienced with sarcomas.