& receive updated information on
desmoid research & DTRF activities.
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THIS IS YOUR RESEARCH
Our mission is yours. Together we’ll find a cure!
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SUPPORTING PATIENTS
Information is Key!
ANNUAL DTRF PATIENT SYMPOSIUM
September 28, 2013Register here today!
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ONLY OUR OPTIMISM IS INCURABLE
Together we will find a cure!
FUNDRAISE FOR DESMOID TUMOR RESEARCH
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Join us for an evening of wine and laughter featuring a comedy performance by Rosie O'Donnell and wines by The Grape D'Vine.
This special event will be held on Wednesday, June 5th in Piermont, NY. Purchase tickets here! -
Dr. Oz is teaming up with Rosie O’Donnell to help raise awareness for the Desmoid Tumor Research Foundation. View video.
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Rosie O'Donnell and Michelle Rounds announce support of DTRF. This story, which has been picked up by major media outlets has created quite a buzz, see NY Daily News, US Magazine, People Magazine and many others.
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Weiss Study
April 2013- Aaron Weiss, DO, awarded DTRF grant on Deregulated mTOR in desmoid-type fibromatosis: Identification and validation of a new therapeutic target.
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Dr. Pollock
February 2013- Audio of MD Anderson's Dr. Pollock discussing Desmoid tumors here.
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Sloan-Kettering Trial
February 2013- Information about Memorial Sloan- Kettering's phase II clinical trial here.
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Methotrexate
January 2013- There is a Phase II randomized study evaluating Pazopanib versus Methotrexate/ Vinblastine in adult patients with desmoid tumours (DESMOPAZ - Institute Bergonie, Bordeaux, Dr. Italiano). The purpose of the study is to evaluate the efficacy of Pazopanib in comparison to chemptherapy with methotrexate and vinblastine in adult patients with desmoid tumors.
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Activity of sorafenib against
Study reports activity of sorafenib against desmoid tumor/deep fibromatosis (DT/DF). See abstract.
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2012 CTOS Presentations
CTOS (Connectivity Tissue Oncology Society) Presentations - November 2012. See desmoid related presentations.
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Rosie O’Donnell and Michelle Rounds...
Rosie O’Donnell and Michelle Rounds have teamed up with DTRF to help fundraising efforts. They kicked off their efforts by participating in the annual DTRF Running for Answers 5K. O’Donnell joined The Desmoid Tumor Research Foundation Board of Directors and Rounds has taken the position of Fundraising Chair for DTRF. Read more here.
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Exciting research discovery by Dr Ben Alman
Exciting research discovery by Dr Ben Alman Identifies Nefopam as Targeting Cell Proliferation. See abstract.
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Final Program for the Connective Tissue
Final Program for the Connective Tissue Oncology Society combined CTOS & MSTS Meeting October 2011 in Chicago IL Articles of Interest include: Papers #8, 9, 88 and Posters #18, 85, 86, 114, 206, 254
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Study Report from American Society
Study Report from American Society of Clinical Oncology: Prognostic Factors Influencing Progression-Free Survival Determined From a Series of Sporadic Desmoid Tumors: A Wait-and-See Policy According to Tumor Presentation This study clearly demonstrates that there are different prognostic subgroups of desmoid tumors...
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Multidisciplinary treatment for an enigmatic
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Desmoid fibromatosis and pregnancy
Desmoid fibromatosis and pregnancy: A multi-institutional analysis of recurrence and obstetric risk.
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2012 Grant Awards Announced
The Desmoid Tumor Research Foundation is a nonprofit, tax-exempt charitable organization under Section 501(c)(3) of the Internal Revenue Code. Donations are tax-deductible as allowed by law.
