Desmoid Tumor Research Foundation

Feel the Magic of a Cure

The 2008 Patient Support Meeting and Fundraiser was a success!

During the afternoon of May 29th approximately 65 patients and family members heard presentations from desmoid experts (SEE LIST OF PRESENTERS) We all had an opportunity to ask them questions and learn about the important research that DTRF is currently funding. Then there was time for a group discussion to support each other and hear how fellow desmoid patients are dealing with their particular disease. Then we were all off to Seasons Catering!

Approximately 260 people attended the DTRF Gala Dinner that evening. Good food, great music, and wonderful silent and live auction items made for a very enjoyable evening. We raised over $50,000 alone on our auction items! Some excited winners are heading off to the Red Carpet at the Oscars, spending a “Dream Day” with the NY Giants, or off to vacation at Cabo San Lucas!

The poignant video and talk from Lyon Herron, a brave young man with Gardners Syndrome highlighted the reason we were all there- to find a cure for this rare disease.

We hope to see you next year!

Thanks to our presenters who attended

1. Benjamin Alman, MD, FRCSC, Hospital for Sick Children, Toronto; 2006 and 2007 DTRF Grant Recipient for "Identifying the Desmoid Initiating Cell".

2. John Chabot, MD, FACS, Chief, Division of General Surgery, New York-Presbyterian Hospital/Columbia

3. James Church, MD, Cleveland Clinic, Department of Colorectal Surgery, Director,
Jagelman Inherited Colorectal Cancer Registries.

4. David E. Joyner, PhD, Huntsman Cancer Institute, University of Utah, 2006, 2007 DTRF Grant Recipient for "Do Growth Factors Mediate Desmoid Tumor Invasiveness and Drug Sensitivity?".

5. Dina C. Lev, MD, MD Anderson Cancer Center, Cancer biology; 2006 and 2007 DTRF
Grant Recipient for "Molecular determinants of desmoid tumor development and progression".

6. Raphael E. Pollock, MD, PhD, MD Anderson Cancer Center, Division Head, Surgery, Professor, Surgical Oncology, and Molecular & Cellular Oncology.

7. Bruce Shriver, PhD, Editor in Chief, The Liddy Shriver Sarcoma Initiative.

8. Matthew van de Rijn, Stanford University, Pathology, 2007 DTRF Grantee for "ROR2, a potential novel therapeutic target in desmoid tumors."

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