Desmoid Tumor Research Foundation

When evaluating treatment options, it is prudent to find a physician experienced in desmoid tumors. Also, consider getting more than one opinion. As desmoids are soft-tissue tumors, physicians experienced in the treatment of sarcoma may be the most familiar with desmoid diagnosis and treatment.

SARC Participants

SARC (Sarcoma Alliance for Research through Collaboration) works with healthcare professionals as part of a collaborative team from over 35 institutions in the United States and many international institutions as well.

To participate in SARC, physicians must be part of a multidisciplinary sarcoma practice that includes expertise in diagnosis (pathology and radiology physicians) and treatment (pediatric, medical, radiation, surgical and orthopedic oncologist) of sarcoma. In addition, participants must have a commitment to research and a practice that sees at least 80 (only 20 if purely a pediatric center) new sarcoma cases per year. SARC participants are committed to the CTOS (Connective Tissue Oncology Society) model and philosophy that sarcomas are best studied and managed in a collaborative fashion. Physicians who are members of SARC can be found at the following institutions.

United States

Arkansas Children’s Hospital
Little Rock, Arkansas
http://www.archildrens.org/

Case Western (University Hospitals of Cleveland)
Cleveland, OH
http://www.uhhospitals.org

Carolinas Hematology and Oncology Association
Charlotte, NC
http://www.carolinashealthcare.org/facilities/cpn/prac_phys.nos?practice_id=119#

Cedars Sinai Medical Center
Los Angeles, CA
https://referrals.cedars-sinai.edu/default.aspx

City of Hope National Medical Center
Duarte, CA
http://www.cityofhope.org/Physicians/

Cleveland Clinic Foundation
Cleveland, OH
http://www.clevelandclinic.org/staff/

Dana-Farber Cancer Institute
Boston, MA
http://www.dana-farber.org/

Duke University
Durham, NC
http://www.dukehealth.org/

Emory University
Atlanta, GA
http://www.emoryhealthcare.org/

Fox Chase Cancer Center
Philadelphia, PA
http://www.fccc.edu/physician_directory/

H. Lee Moffitt Cancer Center and Research Institute
Tampa, FL
http://www.moffitt.org/

Huntsman Cancer Institute
Salt Lake City, UT
http://www.huntsmancancer.org/

Indiana University Cancer Center
Indianapolis, IN
http://cancer.iu.edu/programs/sarcoma/

Johns Hopkins Medical Center
Baltimore, MD
http://www.hopkinshospital.org/

Kootenai Cancer Center
Coeur d’Alene, ID
http://www.kmc.org/cancer.cfm?id=87#

Massachusetts General Hospital
Boston, MA
http://www.massgeneral.org/cancer/care/adult/sarcoma/index.asp

Mayo Clinic
Rochester, MN
http://www.mayoclinic.org/

MD Anderson Cancer Center
Houston, TX
http://www.mdanderson.org/Care_Centers/Sarcoma/

Memorial Sloan Kettering Cancer Center
New York, NY
http://www.mskcc.org/mskcc/html/435.cfm

National Cancer Institute
Bethesda, MD
http://www.cancer.gov/cancertopics/types/soft-tissue-sarcoma/

Nebraska Methodist Hospital
Omaha, NE
http://www.bestcare.org/

Oregon Health and Science University
Portland, OR
http://www.ohsu.edu/health/

Pennsylvania Oncology and Hematology Associates
Philadelphia, PA
http://pennhealth.com/Wagform/MainPage.aspx?config=provider&P=LP&ID=491

Roswell Park Cancer Institute
Buffalo, NY
http://www.roswellpark.org/Patient_Care/Types_of_Cancer/Sarcoma

Sarcoma Oncology Center
Santa Monica, CA
http://www.sarcomaoncology.com/

Stanford Comprehensive Cancer Center
Stanford, CA
http://cancer.stanford.edu/

Texas Children’s Cancer Center
Houston, TX
http://www.txccc.org/content.cfm?content_id=936

UCLA Cancer Center
Los Angeles, CA
http://www.cancer.mednet.ucla.edu/

University of Arizona
Tucson, AZ
http://www.arizonacancercenter.org/

University of Colorado
Denver, CO
http://upi.uchsc.edu/prp_cc_sarc.html

University of Florida Health/Science Center
Gainesville, FL
http://www.health.ufl.edu/

University of Iowa
Iowa City, Iowa
http://www.uihealthcare.com/depts/cancercenter/index.html

University of Michigan Cancer Center
Ann Arbor, MI
http://www.cancer.med.umich.edu/cancertreat/tissue_bone/index.shtml

University of Pittsburgh Medical Center
Pittsburgh, PA
http://www.upmccancercenters.com/

University of Washington/Seattle Cancer Care Alliance
Seattle, WA
http://www.seattlecca.org/patientsandfamilies/adultCare/clinicalProgs/sarcoma/

Vanderbilt University Medical Center
Nashville, TN
http://www.vicc.org/cancers/disease.php?id=54

Wake Forest University Baptist Medical Center
Winston-Salem, NC
http://www1.wfubmc.edu/cancer/

Washington, DC Cancer Institute (Medstar)
Washington, DC
http://www.whcenter.org/

Other Sarcoma Centers

United States

Columbia PresbyterianSarcoma Program
(New York, New York)
http://hora.cpmc.columbia.edu /dept/medicine/sarcoma/indexori g.html

Joan Karnell Cancer Center at Pennsylvania Hospital
(Philadelphia, PA)
http://www.pennhealth.com /pahosp/cancer/prog_comp /sarcoma.html

The Linberger Comprehensive Cancer Center at the University of North Carolina at Chapel Hill
(Chapel Hill, NC)
http://cancer.med.unc.edu/patient/programs/sarcoma.asp

The Denver Clinic For Extremities at Risk
Presbyterian/St.Luke's Medical Center
(Denver, CO)
http://www.thedenverclinic.com

CANADA

Fraser Valley Cancer Centre
(British Columbia)
http://www.bccancer.bc.ca/RS/FraserValleyCentre/

United Kingdom

St Mark's Hospital
(London)
http://www.polyposisregistry.org.uk

Germany

University of Heidelberg

http://www.sos-desmoid.de