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    PATIENTS LEARN & CONNECT

    Register here for the 2016 Annual Patient Meeting on Saturday, September 24 in Philadelphia!

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    JOIN OUR COMMUNITY OF SUPPORTERS

     

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    RUNNING FOR ANSWERS 5K 

    Register here for our 7th Annual Running for Answers 5K & Kids' Fun Run on September 25.

    View pictures here from our 2015 event.

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    DTRF VISITS NIH

    DTRF at NIH in DC with researchers running a clinical trial on desmoid tumors.

     

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    PLAN A DTRF FUNDRAISER

    Create your fundraising page here.

     

     

     

     

 
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    Save the date for DTRF's Charity Golf Outing at The Tuxedo Club in Tuxedo, NY, on June 13, 2016!

    To register (and for more information), click here.

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    DTRF is currently developing a Patient Reported Outcome (PRO) tool for desmoid tumors.

    We believe that development of a PRO tool in desmoid tumors will facilitate a new regulatory endpoint that can be used in all future clinical trials and will be a great investment of resources to advance the field for researchers worldwide.

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    DTRF has just announced its grant awards for 2016.

    With the support of our donors, we were able to fund innovative research projects at institutions including Stanford University, Ohio State University, Memorial Sloan Kettering Cancer Center, University of Miami, Ghent University, Duke University and others.

    Review the scientific and lay abstracts here.

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    DTRF's volunteer fundraisers are organizing fundraising events all over the country! Check out the list of upcoming events here, and join the effort!

    If you are interested in putting together your own fundraiser on behalf of DTRF, please email lynne@dtrf.org.

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    While we were at the DTRF Running for Answers 5K, doctors and researchers from around the world were collaborating and setting research priorities. We had representatives from the FDA, Pfizer and Bayer, as well as attendees from Germany, Japan, Italy, Canada, Finland and England. (Some of the doctors pictured here.)

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