DTRF Desmoid Tumor Research Foundation home page

News & Announcements
•	2012 RFP available for download
•	2011 Grant Awards Announced
•	Cleveland Clinic is currently enrolling subjects (10 to 17 years of age) with FAP and an intact colon into a study assessing the effectiveness and safety of Celebrex versus placebo in the prevention of colorectal polyps
•	Final Program for the Connective Tissue Oncology Society combined CTOS & MSTS Meeting October 2011 in Chicago IL Articles of Interest include: Papers #8, 9, 88 and Posters #18, 85, 86, 114, 206, 254
•	Study Report from American Society of Clinical Oncology: Prognostic Factors Influencing Progression-Free Survival Determined From a Series of Sporadic Desmoid Tumors: A Wait-and-See Policy According to Tumor Presentation This study clearly demonstrates that there are different prognostic subgroups of desmoid tumors that could benefit from different therapeutic strategies, including a wait-and-see policy
•	Multidisciplinary treatment for an enigmatic disease From OncoLog, MD Anderson's report to physicians about advances in cancer care and research
•	Activity of sorafenib against desmoid tumor/deep fibromatosis (DT/DF)
•	University of Pennsylvania is seeking patients for their hydroxyurea study on both recurrent tumors and as a first line treatment
•	New Clinical Trial Funded by DTRF: A Pilot Study Evaluating the Use of mTor Inhibitor Sirolimus in Children and Young Adults With Desmoid-Type fibromatosis is currently recruiting participants

Upcoming Events
	Please Join Us for an evening of Wine Tasting, Food and Music The 2012 DTRF Wine Tasting will be held on May 17th, 2012 from 7pm to 10pm at The View in Piermont, NY Meredith Vieira will be joining us. We hope you will also!
	2012 Patient Symposium and Running for Answers Run/Walk On October 20th and 21st in Philadelphia PA. Learn about the latest research and current treatment options from the experts! The Symposium will be followed on Sunday by our third annual Philadelphia Running for Answers Run/Walk at beautiful Fairmount Park. Currently the speakers include the following: Raphael E. Pollock, MD, PhD (MD Anderson Cancer Center) Mrinal Gounder, MD (Memorial Sloan-Kettering Cancer Center) Dina C. Lev, MD (MD Anderson Cancer Center) James Church, MD (Cleveland Clinic)
•	March 24th, 2012: 3rd Annual 5K Run/Walk in Naples, Florida
•	The fourth annual Lap4Life Chadwick Lake Race / Walk / Kid's Race will be held on June 23rd, 2012 in Newburgh, NY - Fun for the entire family. Details available at lap4life.org.
•	Read more about Upcoming Events
Past Events
•	The 2011 DTRF Patient Symposium and Running for Answers 5K Fundraiser are a Big Success! Patient Support Meeting Information and Pictures Running For Answers Information and Pictures
•	Read about Past Events

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Video from Dr. Benjamin A. Alman on Identifying the Desmoid Initiating Cell

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This book is the first manuscript dedicated entirely to Desmoid Tumors. Written by prominent clinicians, researchers and advocacy group experts, patients and professionals alike will find this to be a comprehensive review. Clinical presentation, imaging guidelines and treatment paradigms are highlighted. Both the sporadic and heredity forms (Familial Adenomatous Polyposis) will be discussed. (more)

Please Join Us for an evening of Wine Tasting, Food and Music

2012 Patient Symposium and Running for Answers Run/Walk

Please Join Us for an evening of
Wine Tasting, Food and Music

2012 Patient Symposium and
Running for Answers Run/Walk